My little red tether is my anchor in running with my friends. A beautiful guide dog has been my tether/anchor in mobility and independence for 17 years: 1. Pantera 2. Cricket, and now my beautiful 3. Georgina (Georgie). A life of family and friends is my joy and anchor in life.

The human spirit is stronger than anything that can happen to it. CC Scott

Tuesday, January 11, 2011

Decisions: Retinitis Pigmentosa

The Assistance Dog Blog carnival topic is Decisions.


My decision to have a guide dog has been one of the most joyful and helpful aspects of my blindness journey for me and my family.  For the past 14 years, because of this decision, my mobility and independence and joy have been enhanced!

Retinitis Pigmentosa throws one into a  journey of Decisions.  I've tried to make Decisions that will help mine and my family's journey in a positive way.

I was diagnosed with Retinitis Pigmentosa at age 18 and shortly after, my parents made the decision to go to UCLA to have the diagnosis confirmed.  I was seriously dating Steve at the time, my husband of 26 1/2 years, and so my parents made the decision to invite him to join us on this journey. (Doesn't that sound like a fun date!)  In the gift shop there was a plaque with the Serenity Prayer:  God grant me the Serenity to Accept the things I cannot Change, Courage to change the things I can and the Wisdom to know the Difference.  I made the decision to try to incorporate this saying into my life.  The diagnosis didn't phase me too much at that time.  I was falling fast in love, however, I did recognize that the decision to marry Steve was an important one.   He has supported me every step of the way and in every decision I have had to make.  Our kids arrived, one year (Natalie) and three years (Kendall) after we were married; and such a beautiful blessing and decision.   The decision to be home during their early years and then work part-time until they graduated brings memories that I am so grateful.  Our decision to find a home that was near a bus stop, their schools, grocery store and so much more was a lifesaving decision.  As a busy wife and mom, it allowed our family to carry on with much more freedom and independence.   My daughter told her current employer, a transit system in Cali, that she gained great experience on the public transportation system as a child!  The decision to return to school and pursue a master's degree in counseling was also a very positive one in my life.  The decision to have a guide dog was life changing.  It has allowed me independence for 14 years, thus far.   The decision to start my own business has also been a very positive decision. 

decision I chose to make was to Surrender to Retinitis Pigmentosa.  No, not give up.  Rather, to let go and allow myself to learn the lessons that were placed before me.  I made the decision that Retinitis Pigmentosa would not define me.  Sometimes, I had to make a decision literally by being banged in the head (for example, I decided to start using a cane when I walked into a stop sign!)   I believe that Retinitis Pigmentosa continues to teach me lessons each day.  I don't believe blindness is an easy teacher.  Some days there are aspects that are very hard.  However, many days, I don't give it much thought.  It simply is my life and a small aspect of who I am.  I enjoy processing and blogging about my journey with a guide dog and blindness.  Some days there are grief and I make the decision to listen to my heart in a caring way to support those feelings of loss that emerge.  In life, days go by without it being a topic of conversation. 

I make a conscious decision each day to find joy and appreciation in that day and am grateful that a very sweet, caring five-year old lab is by my side in this journey. 

8 comments:

Lisa, Ellie and Hosta said...

Very nice post - I like it. You are such an inspiration.

s day @ sdayrunning.blogspot.com said...

I've DECIDED that you're awesome. The MOST awesome person I know. I LOVE your DECISION.

MySpecialDoggies said...

Thank you for putting perspective into my life!

Nadine

karen (Mom) said...

What a thoughtful inspiring blog. Thank you. What a blessing in our lives to have a daughter with such resilience in face of great difficulty and to have made the decision to have a wonderful and joyful life. Love you

BECKY said...

Hey there Other Becky! I just love reading your blog and I must make sure I stop by every time I see a new post. I don't know if you just mentioned "Decision" about blogging...but I'm so glad you made the "Decision" to write one, because you sure are an inspiration! Hugs to you and your lovely Cricket!

L^2 said...

Excellent post, Becky! Thank you so much for sharing your story for the ADBC. I'm checking all my links now, so the full list should be posted on my blog soon.

Jess and Glacier said...

I really liked when you said that blindness is a teacher, just not an easy one. It's true, but if we're open to its lessons, our lives become incredibly enriched.
Oh dear, I'm sounding like a Halmark card. lol
Thanks for the post-it was very enjoyable.

Ro said...

Love the date with Steve!! Hahaha!! How romantic! No really, it is. He's such a good guy. So glad to have someone like you in my blogger family!